Perceptions of the Caregiving Role Among Young-Onset Dementia Adult Child Caregivers

The purpose of this study is to describe the perceptions of the caregiving role from the perspective of adult child young-onset dementia caregivers. By gaining a better understanding of the experiences of caregiving among adult children of persons with young onset dementia, we hope this knowledge can inform the future development of age-appropriate assists/supports intended for this population.

Individuals who are interested in taking part will be asked to complete an interview to learn more about their perceptions of caring for a parent with young-onset dementia. Interviews will be approximately 45-60 minutes long and will be conducted either over the phone or online (e.g., Zoom). The information gathered will be shared with the research community through seminars, conferences, presentations, and journal articles.

Who Can Participate?
Adult children who are caregivers for their parent with young-onset dementia. The adult children do not need to be the primary caregiver for their parent, as long as they have had a caregiving experience within the past 2 years, they can participate in this study. Specifically, we are looking for individuals who are:

  1. Over the age of 18
  2. Able to speak and understand English
  3. Able to provide informed consent

Recruitment End Date: August 31, 2021

Contact Information
Name: Camryn Berry
Title/Position: Student Investigator
Affiliated Institution: University of Waterloo
Phone: (519) 503-2245