Participate in research
Participate in research can be a rewarding experience, knowing you’ve played a part in improving our knowledge about dementia.
Help move dementia research forward
Researchers are often looking for people willing to provide their opinions or time as participants in surveys and studies. Their work is vital – they’re looking for ways to prevent dementia and trying to find treatments to improve the quality of life for people living with the disease.
Surveys and studies for Manitobans
CAN-PROTECT is an exciting opportunity to take part in a major Canadian research study on how the brain ages. We ask every participant to nominate a study partner — a friend or family member aged 18 or older — who can provide additional information about them.
The research team developed an additional CAN-PROTECT component specifically for participants who are caregivers and care partners of people living with cognitive disorders such as Alzheimer’s disease and related conditions.
The University of Calgary runs CAN-PROTECT in partnership with the University of Exeter, UK.
You can join the study if you:
- Are aged 18 years or older
- Reside in Canada
- Have access to a computer/touchscreen device
- Can provide informed consent
- Do not have a diagnosis of dementia
Additionally, we are enrolling participants who care for persons living with dementia for caregiver-specific assessments.
Once a year, we will ask you to complete a set of questionnaires about yourself, your lifestyle, and your health. Each one takes an hour or less to finish. We will also ask you to complete a series of online tests that measure changes in brain function.
Visit can-protect.ca to learn more and to sign up for the study.
This study explores the air travel experiences of people living with dementia and their travel companions. The goal of this study is to better understand moments that may feel stressful, confusing, or overwhelming when travelling by air.
Participants will take part in a one-time interview, either online, by phone or in person, lasting about 1 hour. We will invite people living with dementia to share their experiences, and travel companions — including family, friends, or caregivers — may also join.
You are eligible to participate if you are:
- A person living with dementia who has flown before, or a travel companion who has supported someone living with dementia during air travel
- Willing to share your experiences in a friendly conversation
- Able to communicate in English
Recruitment start date: September 2, 2025
Recruitment end date: March 1, 2026
Click here for more details about this study
The University of Calgary is looking for unpaid care partners to someone living with dementia to complete a survey exploring the impact of dementia-related changes on informal care partners. From the results of this study, educational materials will be created to better support care partners in a meaningful way.
To sign up, scan the QR code on the flyer below or email caregivers.coop@ucalgary.ca and the research team will send a link to the online survey, which is available in both English and French. After completing the survey, you will be entered in a draw to win one of 50, $60 e-gift cards.
Click here to view study flyer
A study from Wilfrid Laurier University is looking to understand the needs of family caregivers/care partners for people living with young-onset dementia within community programming across Canada.
As a participant, we will ask you to complete an online questionnaire through Qualtrics, which takes about 18 to 25 minutes to finish.
Click here if you believe you are eligible and would like to participate.
For any further information or if you have any questions regarding participation, please contact onei5330@mylaurier.ca
If you are an adult child of someone living with dementia, you may be eligible to participate in a research study about the experiences of dementia care from the family perspective.
The Families and Aging research program at Canadian Mennonite University is looking for volunteers to participate in conversational interviews about their experiences. The goal is to better understand family care and the impact of the health care system on family care.
As a participant, you will be asked to describe your experience of dementia care from your point of view in an interview. The interview can take place in person or online and would take approximately 60 minutes.
In appreciation of your time, you would receive a $25 gift card for a local coffee shop or grocery store.
To learn more about participating in this study, please contact:
Dr. Heather Campbell-Enns
hcampbell-enns@cmu.ca
204-487*3300- ext.360
Click here to view or share a poster about the study
This study aims to evaluate how older adults feel about doing a set of tasks that ask them to estimate the duration of various events and ask them to recall past memories or imagine future scenarios.
The study will take 60 to 90 minutes. During your scheduled session, you will answer questions about your cognitive state and complete two tasks.
You are eligible to participate if you are:
- At least 55 years of age
- Fluent in English
- Reside in Canada
- Haven’t been diagnosed with dementia
- Have normal or adjusted-normal vision and hearing
- Haven’t been diagnosed with a neurological disorder (eg. Parkinson’s disease, brain tumour)
- Don’t have a recent history of a medical condition that may affect your memory thinking or alertness (eg. sleep apnea, hypertension)
- Don’t have a recent history of a stroke
- Haven’t been diagnosed with a serious mental illness (eg. schizophrenia, mania)
- Don’t have a history of alcohol or drug abuse that affected your activities of daily life and/or required treatment
Are you a live-in caregiver for a family member or friend who receives services from Home Care? Would you like to share your experiences?
A researcher from the University of Manitoba is recruiting participants for a study that will investigate the unique perspectives of live-in caregivers regarding how home care services may affect their lives and the home in which they live. The information gained may inform policy work that benefits caregivers in Manitoba, and thus may help other families in the future.
Participation in this research is fully confidential and involves individual interviews and a brief tour of the person’s home.
We encourage anyone interested in participating to contact the lead investigator:
Kaitlyn Kuryk
Department of Sociology and Criminology
University of Manitoba
Phone: 204-250-3706
obedzink@myumanitoba.ca
Click here for details about this research, including a sample of the consent form. Please contact the researcher to learn how you can get involved.
The Alzheimer Society Research Portal
The Alzheimer Society Research Portal connects researchers with Canadians who want to participate in studies and surveys.
If you want us to promote your research, please visit the portal to submit your study for approval, then contact us at alzmb@alzheimer.mb.ca so we can help connect you with participants in Manitoba
Participation considerations
There are several things to consider regarding your participation in any dementia research study, including:
- If a research ethics board has approved the study
- The kind of tests and experimental treatments involved and their risks
- Time commitment for the study and how long it will last
- How we will protect your safety and privacy
- Any effects the study might have on your current treatment and care
- Available reimbursement for any costs you might have as a result of participating
For more information on research studies and answers to participants’ frequently asked questions, visit the Alzheimer Society of Canada FAQ page.
