Why end-of-life care conversations matter in dementia

Preparing for end-of-life care

For many care partners, thinking about end-of-life care can feel overwhelming. It’s a topic often avoided — but planning ahead is one of the most meaningful ways to honour the wishes, values and dignity of a person living with dementia.

“Don’t be afraid to start conversations about future care early,” says Jessica Harper, First Link Senior Manager. “When families take time to explore options and understand wishes in advance, they’re better prepared to make informed decisions with less emotional stress.”

Dementia is a progressive disease and there comes a point when a person may not be able to express their wishes. “Planning ahead helps ensure their voice is still heard and respected.”

Discussions might include preferences about where they would like to receive care, what medical interventions they would want and what brings them comfort.

Advance care planning — thinking through and documenting future health care decisions — is a key part of this process. It can ease decision-making for families and reduce stress during already difficult times. “The window of opportunity to include the person in decision-making is early in the disease,” says Jessica. “Being proactive can make a meaningful difference for both the person living with dementia and their care partners.”

Equally important is understanding the role of palliative care. A palliative approach focuses on comfort, dignity and quality of life—not just in the final days, but often months or even years earlier. It does not mean stopping all treatments, but rather prioritizing those that reduce pain and distress while supporting emotional and spiritual well-being.

Personalized, compassionate care is at the heart of this approach. Small, meaningful details — such as favourite music, familiar routines or cultural practices — can make a significant difference in comfort and well-being.

While these conversations may be difficult, they are ultimately an act of care. By planning ahead, care partners can help ensure their loved one’s final chapter is guided by compassion, respect and peace.

We are here to help you work through these conversations. Connect with us by phone, email or fill out our online form and we’ll reach out to you.

To learn more about end-of-life care, visit our National website: End-of-life care | Alzheimer Society of Canada