Ask the Expert: Receiving a dementia diagnosis

Question: Why is the dementia diagnostic process different for everyone?

The diagnostic process for dementia can vary widely from person to person because dementia does not present the same way in everyone.

Dementia is often associated with memory loss, but not all types of dementia begin with memory changes. Some may first experience physical symptoms, communication difficulties or changes in mood and behaviour.

In many cases, people attribute memory changes to normal aging. Other symptoms, such as mood or behavioural changes, may be misinterpreted as mental health concerns or another neurological condition.
These misunderstandings can delay a diagnosis.

Sometimes, stigma or fear surrounding dementia can also delay diagnosis. The reality of dementia is that it is a progressive and terminal condition and the sooner you can get a diagnosis, the sooner you can connect to support and be an active participant in planning your future care.

Preparing for a doctor’s appointment

There are several tests commonly used to diagnose dementia. These may include screening and cognitive tests conducted in a doctor’s office, as well as blood tests and brain imaging to rule out other possible causes of symptoms. Preparing for a doctor’s visit can help maximize the time spent with a health care provider. It is helpful to:

• Write down all symptoms or changes you or others have noticed, including when they started and whether they are consistent or worsening
• Note how these symptoms are affecting daily activities and independence
• Prepare a list of questions or topics you would like the doctor to clarify

Having a strong understanding of dementia is important for many reasons. Not only can it help us notice signs and symptoms early on, but it can also help us meet the needs of those living with the disease.

Join our free Understanding Dementia online education session on May 19, from 2 – 3 pm, for more information and helpful tips.