Participate in Dementia Research - Alzheimer Society Manitoba

Help move dementia research forward

Researchers are often looking for people willing to provide their opinions or time as participants in surveys and studies. Their work is vital – they’re looking for ways to prevent dementia and trying to find treatments to improve the quality of life for people living with the disease.

A study from Wilfrid Laurier University is looking to understand the needs of family caregivers/care partners for people living with young-onset dementia within community programming across Canada.

As a participant, you will be asked to complete a questionnaire (completed online via Qualtrics) (18-25 minutes in length).

Click here if you believe you are eligible and would like to participate.

For any further information or if you have any questions regarding participation, please contact onei5330@mylaurier.ca

CAN-PROTECT is an exciting opportunity to take part in a major Canadian research study on how the brain ages. Every participant is asked to nominate a study partner, a friend or family member 18 years and older who can provide additional information about them.

An additional CAN-PROTECT component was developed specifically for participants who are caregivers and care partners of persons with cognitive disorders like Alzheimer’s disease and related disorders

CAN-PROTECT is run by the University of Calgary in partnership with the University of Exeter, UK.

You can join the study if you:

Are aged 18 years or older
Reside in Canada
Have access to a computer/touchscreen device
Can provide informed consent
Do not have a diagnosis of dementia

Additionally, we are enrolling participants who care for persons living with dementia for caregiver-specific assessments.

Once a year, you will be asked to complete a set of questionnaires about yourself, your lifestyle and your health. Each takes an hour or less to complete. You will also be asked to take a series of online tests, to measure changes in brain function.

Visit can-protect.ca to learn more and to sign up for the study.

Are you a live-in caregiver for a family member or friend who receives services from Home Care? Would you like to share your experiences?

A researcher from the University of Manitoba is recruiting participants for a study that will investigate the unique perspectives of live-in caregivers regarding how home care services may affect their lives and the home in which they live. The information gained may inform policy work that benefits caregivers in Manitoba, and thus may help other families in the future.

Participation in this research is fully confidential and involves individual interviews and a brief tour of the person’s home.

Those interested in participating are encouraged to contact the lead investigator:

Kaitlyn Kuryk
Department of Sociology and Criminology
University of Manitoba
Phone: 204-250-3706
obedzink@myumanitoba.ca

Click here for details about this research, including a sample of the consent form. Please contact the researcher for information on how to get involved.

The Alzheimer Society Research Portal connects researchers with Canadians who want to participate in studies and surveys.

If you are interested in having us promote your research, please visit the portal to have your study approved and then reach out to us at alzmb@alzheimer.mb.ca so we can help connect you with participants in Manitoba.

Visit the research portal

There are several things to consider regarding your participation in any dementia research study, including:

If the study has been approved by a research ethics board
The kind of tests and experimental treatments involved and their risks
Time commitment for the study and how long it will last
How your safety and privacy will be protected
Any effects the study might have on your current treatment and care
Available reimbursement for any costs you might have as a result of participating

For more information on research studies and answers to participants’ frequently asked questions, visit the Alzheimer Society of Canada FAQ page.