Participate in Research

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Researchers often reach out to find people who are willing to provide their opinions or time as participants in surveys and studies. Their work is vital – they’re looking for ways to prevent dementia and trying to find treatments to improve quality of life for people living with the disease. Finding a cure and eradicating the disease is the ultimate goal.

Below are current research studies looking for participants. Those interested in participating can click here for a list of questions to ask when you are considering participation in a clinical study.

TABLE OF CONTENTS

Alzheimer Society Research Portal – Canada Wide
Participate in the CAN-PROTECT Brain Aging Study
Volunteer Opportunity – Citizen Reviewer for Alzheimer Society Research Program
Survey on Clinical Barriers in Frontotemporal Dementia and Related Disorders
Perspectives of Live-in Caregivers on Homecare Services

Alzheimer Society Research Portal – Canada Wide

The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia. Click here to visit the portal.

 

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Participate in the CAN-PROTECT Brain Aging Study

CAN-PROTECT is an exciting opportunity to take part in a major Canadian research study on how the brain ages.

Every participant is asked to nominate a study partner, a friend or family member 18 years and older who can provide additional information about them.

An additional CAN-PROTECT component was developed specifically for participants who are caregivers and care partners of persons with cognitive disorders like Alzheimer’s disease and related disorders.

CAN-PROTECT is run by the University of Calgary in partnership with the University of Exeter, UK.

Who can participate?

You can join the study if you:

• Are aged 18 years or older
• Reside in Canada
• Have access to a computer/touchscreen device
• Can provide informed consent
• Do not have a diagnosis of dementia

Additionally, we are enrolling participants who care for persons living with dementia for caregiver-specific assessments

What is involved?

Once a year, you will be asked to complete a set of questionnaires about yourself, your lifestyle and your health. Each takes an hour or less to complete. You will also be asked to take a series of online tests, to measure changes in brain function.

Visit can-protect.ca to learn more and to sign up for the study.

 

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Volunteer Opportunity – Citizen Reviewer for Alzheimer Society Research Program

Calling all individuals living with dementia and their care partners!

Do you have an interest in research? The Alzheimer Society Research Program is looking for your unique perspective as a Citizen Reviewer for their 2024 national research competition! Have your voice be heard regarding research initiatives relevant to you.

Within the role, you’ll be required to:

• Review plain language research proposal summaries
• Participate in an orientation via ZOOM in November 2023
• Comment on the proposal summaries’ importance, clarity and relevance to people with lived experiences of dementia
• Participate in an Annual Peer Reviewed Meetings scheduled to occur via video-conference in February 2024

View the official poster here!

View the official recruitment process page here!

If you’re interested in participating, please contact:

Sandra Imazenobe
Research Grants & Awards Coordinator
simazenobe@alzheimer.ca

Deadline to apply is September 29, 2023. For more information, visit alzheimer.ca/citizenreviewers.

 

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Survey on Clinical Barriers in Frontotemporal Dementia and Related Disorders

Share your experience and contribute to the improvement of clinical care!

The purpose of this survey, hosted by the CHUM Research Centre, is to gain a better understanding of the journey of people with a diagnosis of frontotemporal dementia or related disorder and of their care partners within the Canadian health care system.

Eligibility

Canadians aged 18 years or older and to be a:

• Care partner of a person who received a diagnosis of:
  • Frontotemporal dementia (FTD) – behavioural variant
  • Primary progressive aphasia (PPA)
  • Corticobasal syndrome (CBS)
  • Progressive supranuclear palsy (PSP)
  • FTD with amyotrophic lateral sclerosis (FTD with ALS)

or

• Health care provider of patients with aforementioned clinical diagnoses

Access the survey here.

For more information, please contact frontotemporal.research@gmail.com.

 

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Perspectives of Live-in Caregivers on Home Care Services

Are you a live-in caregiver for a family member or friend who receives services from Home Care? Would you like to share your experiences?

A researcher from the University of Manitoba is recruiting participants for a study that will investigate the unique perspectives of live-in caregivers regarding how home care services may affect their lives and the home in which they live. The information gained may inform policy work that benefits caregivers in Manitoba, and thus may help other families in the future.

Participation in this research is fully confidential and involves individual interviews and a brief tour of the person’s home.

Those interested in participating are encouraged to contact the lead investigator:

Kaitlyn Kuryk
Department of Sociology and Criminology
University of Manitoba
Phone: 204-250-3706
obedzink@myumanitoba.ca

Click here for details about this research, including a sample of the consent form. Please contact the researcher for information on how to get involved.

 

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Alzheimer Society Research Portal - Canada Wide

The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia. Click here to visit the portal.   RETURN TO TOP OF PAGE

Participate in the CAN-PROTECT Brain Aging Study

CAN-PROTECT is an exciting opportunity to take part in a major Canadian research study on how the brain ages. Every participant is asked to nominate a study partner, a friend or family member 18 years and older who can provide additional information about them. An additional CAN-PROTECT component was developed specifically for participants who are caregivers and care partners of persons with cognitive disorders like Alzheimer's disease and related disorders. CAN-PROTECT is run by the University of Calgary in partnership with the University of Exeter, UK.

Who can participate?

You can join the study if you:

• Are aged 18 years or older
• Reside in Canada
• Have access to a computer/touchscreen device
• Can provide informed consent
• Do not have a diagnosis of dementia

Additionally, we are enrolling participants who care for persons living with dementia for caregiver-specific assessments

What is involved?

Once a year, you will be asked to complete a set of questionnaires about yourself, your lifestyle and your health. Each takes an hour or less to complete. You will also be asked to take a series of online tests, to measure changes in brain function. Visit can-protect.ca to learn more and to sign up for the study.   RETURN TO TOP OF PAGE  

Volunteer Opportunity - Citizen Reviewer for Alzheimer Society Research Program

Calling all individuals living with dementia and their care partners! Do you have an interest in research? The Alzheimer Society Research Program is looking for your unique perspective as a Citizen Reviewer for their 2024 national research competition! Have your voice be heard regarding research initiatives relevant to you. Within the role, you'll be required to:

• Review plain language research proposal summaries
• Participate in an orientation via ZOOM in November 2023
• Comment on the proposal summaries' importance, clarity and relevance to people with lived experiences of dementia
• Participate in an Annual Peer Reviewed Meetings scheduled to occur via video-conference in February 2024

View the official poster here! View the official recruitment process page here! If you're interested in participating, please contact: Sandra Imazenobe Research Grants & Awards Coordinator simazenobe@alzheimer.ca Deadline to apply is September 29, 2023. For more information, visit alzheimer.ca/citizenreviewers.   RETURN TO TOP OF PAGE  

Survey on Clinical Barriers in Frontotemporal Dementia and Related Disorders

Share your experience and contribute to the improvement of clinical care!

The purpose of this survey, hosted by the CHUM Research Centre, is to gain a better understanding of the journey of people with a diagnosis of frontotemporal dementia or related disorder and of their care partners within the Canadian health care system.

Eligibility

Canadians aged 18 years or older and to be a:

• Care partner of a person who received a diagnosis of:
  • Frontotemporal dementia (FTD) - behavioural variant
  • Primary progressive aphasia (PPA)
  • Corticobasal syndrome (CBS)
  • Progressive supranuclear palsy (PSP)
  • FTD with amyotrophic lateral sclerosis (FTD with ALS)

or

• Health care provider of patients with aforementioned clinical diagnoses

Access the survey here. For more information, please contact frontotemporal.research@gmail.com.   RETURN TO TOP OF PAGE  

Perspectives of Live-in Caregivers on Home Care Services

Are you a live-in caregiver for a family member or friend who receives services from Home Care? Would you like to share your experiences? A researcher from the University of Manitoba is recruiting participants for a study that will investigate the unique perspectives of live-in caregivers regarding how home care services may affect their lives and the home in which they live. The information gained may inform policy work that benefits caregivers in Manitoba, and thus may help other families in the future. Participation in this research is fully confidential and involves individual interviews and a brief tour of the person's home. Those interested in participating are encouraged to contact the lead investigator: Kaitlyn Kuryk Department of Sociology and Criminology University of Manitoba Phone: 204-250-3706 obedzink@myumanitoba.ca Click here for details about this research, including a sample of the consent form. Please contact the researcher for information on how to get involved.   RETURN TO TOP OF PAGE  " ["post_date"]=> string(19) "2013-10-02 16:54:35" ["post_excerpt"]=> string(94) "Find out more about current research initiatives in need of participants and how you can help." ["post_parent"]=> int(67) ["post_status"]=> string(7) "publish" ["post_title"]=> string(23) "Participate in Research" ["post_type"]=> string(4) "page" ["slug"]=> string(11) "participate" ["__type":protected]=> NULL ["_edit_last"]=> string(1) "7" ["_wp_page_template"]=> string(7) "default" ["_thumbnail_id"]=> string(3) "679" ["_post_restored_from"]=> array(3) { ["restored_revision_id"]=> int(5341) ["restored_by_user"]=> int(7) ["restored_time"]=> int(1440171355) } ["_edit_lock"]=> string(12) "1699648824:7" ["_yoast_wpseo_content_score"]=> string(2) "30" ["_yoast_wpseo_estimated-reading-time-minutes"]=> string(1) "5" ["ao_post_optimize"]=> array(5) { ["ao_post_optimize"]=> string(2) "on" ["ao_post_js_optimize"]=> string(2) "on" ["ao_post_css_optimize"]=> string(2) "on" ["ao_post_ccss"]=> string(2) "on" ["ao_post_lazyload"]=> string(2) "on" } ["_oembed_2aad36a27cb9984e163b837281d28069"]=> string(11) "{{unknown}}" ["post_date_gmt"]=> string(19) "2013-10-02 16:54:35" ["comment_status"]=> string(6) "closed" ["ping_status"]=> string(6) "closed" ["post_password"]=> string(0) "" ["post_name"]=> string(11) "participate" ["to_ping"]=> string(0) "" ["pinged"]=> string(0) "" ["post_modified"]=> string(19) "2023-11-10 20:40:44" ["post_modified_gmt"]=> string(19) "2023-11-10 20:40:44" ["post_content_filtered"]=> string(0) "" ["guid"]=> string(49) "http://dev.digitalrelay.ca/alzheimer/?page_id=294" ["menu_order"]=> int(3) ["post_mime_type"]=> string(0) "" ["comment_count"]=> string(1) "0" ["filter"]=> string(3) "raw" ["meta_fields"]=> array(0) { } ["status"]=> string(7) "publish" ["pg_extra_pageboxes"]=> bool(false) ["pg_hide_pageboxes"]=> bool(false) } bool(true)