Participate in Research

Researchers often reach out to find people who are willing to provide their opinions or time as participants in surveys and studies. Their work is vital – they’re looking for ways to prevent dementia and trying to find treatments to improve quality of life for people living with the disease. Finding a cure and eradicating the disease is the ultimate goal.

Below are current research studies looking for participants. Those interested in participating can click here for a list of questions to ask when you are considering participation in a clinical study.

TABLE OF CONTENTS

Perceptions of the Caregiving Role Among Young-Onset Dementia Adult Child Caregivers
Survey: Family/Friend Caregiving During Covid-19


Perceptions of the Caregiving Role Among Young-Onset Dementia Adult Child Caregivers

The purpose of this study is to describe the perceptions of the caregiving role from the perspective of adult child young-onset dementia caregivers. By gaining a better understanding of the experiences of caregiving among adult children of persons with young onset dementia, we hope this knowledge can inform the future development of age-appropriate assists/supports intended for this population.

Individuals who are interested in taking part will be asked to complete an interview to learn more about their perceptions of caring for a parent with young-onset dementia. Interviews will be approximately 45-60 minutes long and will be conducted either over the phone or online (e.g., Zoom). The information gathered will be shared with the research community through seminars, conferences, presentations, and journal articles.

Who Can Participate?
Adult children who are caregivers for their parent with young-onset dementia. The adult children do not need to be the primary caregiver for their parent, as long as they have had a caregiving experience within the past 2 years, they can participate in this study. Specifically, we are looking for individuals who are:

  1. Over the age of 18
  2. Able to speak and understand English
  3. Able to provide informed consent

Recruitment End Date: August 31, 2021

Contact Information
Name: Camryn Berry
Title/Position: Student Investigator
Affiliated Institution: University of Waterloo
Email: c3berry@uwaterloo.ca
Phone: (519) 503-2245

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Can Automated Cars Help People with Dementia Drive Longer?

Researchers from the Toronto Rehabilitation Institute and the University of Toronto are currently conducting an interview-style study related to dementia and driving that is being conducted using video conferencing.

Specifically, they are looking for individuals living with dementia or their caregivers (current or pervious) who may be interested in talking about their opinions of Automated Vehicles.

This study will be conducted via a video call with two researchers from the Toronto Rehabilitation Institute and the University of Toronto, who are part of a team lead by Dr. Jennifer Campos. The interview will last approximately two hours and participants will be compensated for their time with a gift card (valued at $50 an hour).

During the interview participants will be asked questions about their perceptions on automated vehicles and no previous knowledge or experience with automated vehicles is required (they provide all the information necessary in the interview). Participation in this study is voluntary and participants can withdraw from the study at any point in time. There are no risks or harms to participating in this study. Click here to download the poster.

If you are interested in participating or you have any questions, you can contact Hodan at hodan.mohamud@uhn.ca or at (416) 597-3422 ext. 7887.

Recruitment Deadline: December 2021

 

Improving Language Functioning in People with Frontotemporal Dementia

Researchers are recruiting participants for a pilot trial that will investigate the potential of repetitive transcranial magnetic stimulation (rTMS) in improving language functioning in people with language variant of frontotemporal dementia.

rTMS is a non-invasive procedure that does not involve medication. All participants will receive real rTMS; there will be no placebo treatment arm.

Participation in this study will involve language and memory testing, as well as daily visits to the clinic for six weeks of rTMS treatment, which will be provided to participants at no cost.

Interested individuals or their family members can call 204-237-2577 for detailed study information.

This study is approved by the ethics boards of University of Manitoba as well as St. Boniface Hospital.

Study Lead:

Mandana Modirrousta MD PhD FRCPC
Associate Professor
Director, Neuromodulation and Neuropsychiatry Unit

Department of Psychiatry
Department of Neurology
Pathology and Pathophysiology

Faculty Member, Division of Neurodegenerative Disorders
St-Boniface Hospital Albrechtsen Research Centre
M4029, McEwen Building
St. Boniface General Hospital

 

 

Enroll Now in the Largest Clinical Trial on Alzheimer’s Treatment!

Do you have a beloved family member or know someone with probable Alzheimer’s? If yes, you may wish to enroll him/her into this treatment clinical trial.

This study, approved by the University of Manitoba Biomedical Research Ethics Board, uses a novel technology called repetitive Transcranial Magnetic Stimulation (rTMS), a non-invasive procedure with minimal side-effects.

Click here to learn more about the study and its protocol.

Click here to view the poster.

If interested, please contact: Zahra.Moussavi@umanitoba.ca or call: 204-478-6163.

 

Dogs for People with Dementia

Does your family have a companion (pet) or service animal that is especially enjoyed by your family member with dementia?  Does the primary caregiver find that having a pet brings comfort and companionship?

If you answered “yes” to either of these questions,  a research group from Laval University would like to hear from you. They are exploring the benefits of companion animals (pets) and service animals to people with mild to moderate dementia and their caregivers. For more information about this study view the poster here.

Recruitment Deadline: August 31, 2021

 

The Dementia Sibling Study: Brothers and Sisters Sharing Caregiving Responsibilities

Group of happy elderly men laughing and talkingOccupational Therapy students from the University of Toronto Masters program are conducting a study about the experiences of adult children who are caring for their parent with dementia.
The study explores how caregiving responsibilities are shared between adult daughters and sons. Researchers hope to gain a better understanding of the needs of family caregivers.

Participants will be asked to participate in a telephone interview that will take approximately 60- 90 minutes. During the interview a research student will ask the participant about their experiences with providing care and assistance throughout the disease progression. Each interview will be audio recorded using a digital recorder. All information will be kept confidential.  Identifiable information will be concealed and salient details about participants will be removed. All participants will be referred to using a pseudonym or number.

Click here to learn more about the study.

 

 

Have You Lost Your Spouse to Dementia? This Study Strives to Find a Way to Help

Sad Older Man 3x3Dealing with grief that comes from the loss of a spouse can be very difficult, especially for those who cared for a partner who died with dementia. Spousal caregivers clearly require support to facilitate their adjustment from being a dementia caregiver to living a positive life without their spouse. Unfortunately, few resources and interventions are available to help bereaved spousal caregivers of persons with dementia. In order to meet the unique needs of bereaved spousal caregivers, we are looking for volunteers in Manitoba to take part in a study. The study will test a self-administered writing tool for bereavement after caring for a spouse with dementia.

We are looking for individuals who:

  • are 60 years of age or older.
  • had a spouse die three months ago or longer.
  • had a spouse die with advanced dementia.
  • are able to read/write/understand English.

As a participant in this study, you would be asked to participate in three interviews, each of which will last approximately 60 minutes. You will also be asked to use and provide feedback about the bereavement tool.

In appreciation for your time, you will receive a gift card.

If you would like to participate in this research project or have questions, please do not hesitate to call Research Coordinator, Chloe Shindruk , at 204-474-9476 or email: umshindr@myumanitoba.ca

This research has been approved by the University of Manitoba Health Research Ethics Board.

 

Early Detection of Memory Impairment as the First Step for Effective Treatment

Oculus - 3x3*This study is currently on hold due to the COVID-19 pandemic.*

Help Us, Help Others!

Volunteers needed for Alzheimer’s Early Signs Study

We are conducting an investigation for detecting the early symptoms of Alzheimer’s condition. Therefore, we need volunteers both with and without any symptoms of dementia or Alzheimer’s.

We hypothesize that Alzheimer’s condition shows itself in spatial performance long before any serious sign of forgetfulness appears. Therefore, we have designed a fun virtual reality game to assess the spatial cognition through navigation in a virtual building. All you have to do is to play the game! During the game you will sit in a wheelchair, and you will wear a goggle (Oculus Rift 2), in which displays the virtual reality environment in an immersive manner (you will only see the virtual environment and can navigate on it with the wheelchair). You will be asked to move the wheelchair to reach a room inside the building. The wheelchair basically replaces the joystick for playing the game; this is done so that people do not feel motion sickness or headache that is common when older adults use joystick to play a game. The game is entertaining and stimulating.

This study has been approved by the Health Research Ethics Board of the University of Manitoba.

The location of the experiments is at the Fort Gary Campus, University of Manitoba; you will be informed of the exact location of the experiment once you volunteer as we normally run it in one of the three very large rooms, whichever is available at the time. We can run the experiments also in the evening; therefore, there are plenty of room for parking! The study (including a simple questionnaire and the game) takes at most 45 minutes.

To read more about VRP experiments, you may read:

http://bme.eng.umanitoba.ca/labs/bme/research/neurological/virtual-reality/

If interested to be a volunteer and/or help recruiting, and/or need more info, please contact:

Dr. Zahra Moussavi:
Phone: 204-474-7023
Email: Zahra.Moussavi@UManitoba.Ca

 

Examining Ideas for Innovative Technology for Caregivers

man and daughter 3x2Are you a family caregiver for an older adult OR are you an older adult who is a caregiver? Would you like to participate in research that will help to identify technological solutions to assist with some of the challenges of caregiving?

Researchers from the University of British Columbia are looking for volunteers to participate in a study examining caregiver burden and caregiver technologies. Your interaction with researchers will be by phone. The study involves answering questions about your caregiving background and your perceptions of caregiver activities and technologies. The Principal Investigator is Dr. Ben Mortenson of the Department of Occupational Science & Occupational Therapy at the University of British Columbia.

For more information, contact Leena Chau at 604-714-4108 or at leena.chau@ubc.ca