Participate in Research

Researchers often reach out to find people who are willing to provide their opinions or time as participants in surveys and studies. Their work is vital – they’re looking for ways to prevent dementia and trying to find treatments to improve quality of life for people living with the disease. Finding a cure and eradicating the disease is the ultimate goal.

Below are current research studies looking for participants. Those interested in participating can click here for a list of questions to ask when you are considering participation in a clinical study.


Alzheimer Society Research Portal – Canada Wide
Volunteer Opportunity – Citizen Reviewer for Alzheimer Society Research Program
Survey on Clinical Barriers in Frontotemporal Dementia and Related Disorders
Volunteers Needed – Help Shape the Future of Primary Care in Canada
Perspectives of Live-in Caregivers on Homecare Services

Alzheimer Society Research Portal – Canada Wide

The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia. Click here to visit the portal.




Volunteer Opportunity – Citizen Reviewer for Alzheimer Society Research Program

Calling all individuals living with dementia and their care partners!

Do you have an interest in research? The Alzheimer Society Research Program is looking for your unique perspective as a Citizen Reviewer for their 2024 national research competition! Have your voice be heard regarding research initiatives relevant to you.

Within the role, you’ll be required to:

  • Review plain language research proposal summaries
  • Participate in an orientation via ZOOM in November 2023
  • Comment on the proposal summaries’ importance, clarity and relevance to people with lived experiences of dementia
  • Participate in an Annual Peer Reviewed Meetings scheduled to occur via video-conference in February 2024

View the official poster here!

View the official recruitment process page here!

If you’re interested in participating, please contact:

Sandra Imazenobe
Research Grants & Awards Coordinator

Deadline to apply is September 29, 2023. For more information, visit




Survey on Clinical Barriers in Frontotemporal Dementia and Related Disorders

Share your experience and contribute to the improvement of clinical care!

The purpose of this survey, hosted by the CHUM Research Centre, is to gain a better understanding of the journey of people with a diagnosis of frontotemporal dementia or related disorder and of their care partners within the Canadian health care system.


Canadians aged 18 years or older and to be a:

  • Care partner of a person who received a diagnosis of:
    • Frontotemporal dementia (FTD) – behavioural variant
    • Primary progressive aphasia (PPA)
    • Corticobasal syndrome (CBS)
    • Progressive supranuclear palsy (PSP)
    • FTD with amyotrophic lateral sclerosis (FTD with ALS)


  • Health care provider of patients with aforementioned clinical diagnoses

Access the survey here.

For more information, please contact




Volunteers Needed – Help Shape the Future of Primary Care in Canada

OurCare is a pan-Canadian conversation with everyday people about the future of primary care – and they’re coming to Manitoba! This research study is being led by Dr. Tara Kiran, a leading Canadian primary care researcher based at MAP Centre for Urban Health Solutions at St. Michael’s Hospital in Toronto, with the generous input and support of many collaborators, including Health Canada and Even the Odds.

OurCare is looking for a diverse group of Manitoba residents with an interest in improving primary care in Canada to be a part of their Priorities Panel.

Why your input is important:

Though the average person living in Canada may not be a primary care expert, they are an expert in their own experience of our primary care system. To make our primary care system more accessible, equitable and sustainable for all, everyday people living in Canada need to have a say. They will share your recommendations with the federal and provincial governments and professional associations like the College of Family Physicians of Canada.

As a panelist, you will:

  • Learn from OurCare’s experts about primary care in Manitoba
  • Make recommendations on how to ensure the delivery of high-quality care for all residents of Canada

If interested, OurCare asks you to attend all of the following panel sessions:

  • Saturday, Sept. 9, 2023, 12 – 4 pm (online)
  • Saturday, Sept. 23, 2023, 12 – 4 pm (online)
  • Friday, Oct. 13, 2023, 4 – 8 pm (in Winnipeg)
  • Saturday, Oct. 14, 2023, 9 am – 8 pm (in Winnipeg)
  • Sunday, Oct. 15, 2023, 9 am – 4 pm (in Winnipeg)

*OurCare will cover your expenses to join them in Winnipeg. Stipends are available to cover missed work if you need them.

Visit to learn more and to volunteer.




Perspectives of Live-in Caregivers on Home Care Services

Are you a live-in caregiver for a family member or friend who receives services from Home Care? Would you like to share your experiences?

A researcher from the University of Manitoba is recruiting participants for a study that will investigate the unique perspectives of live-in caregivers regarding how home care services may affect their lives and the home in which they live. The information gained may inform policy work that benefits caregivers in Manitoba, and thus may help other families in the future.

Participation in this research is fully confidential and involves individual interviews and a brief tour of the person’s home.

Those interested in participating are encouraged to contact the lead investigator:

Kaitlyn Kuryk
Department of Sociology and Criminology
University of Manitoba
Phone: 204-250-3706

Click here for details about this research, including a sample of the consent form. Please contact the researcher for information on how to get involved.